Tag: caring

IN THE DARK, I FOUND MY LIGHT

FOR MY FRIENDS

THANKYOU PARKINSONS, FOR EVERYTHING!

I know that it’s hard when you are dx with Parkinson’s disease

I can imagine everyone finds it daunting, how can you ever feel at ease

When they tell you, you have it, your mind goes into overdrive

‘What will happen to me now, will I survive’?

Then you start to think, how am I going to tell my friends & family

When I do, I wonder how many friends will leave me

How do I tell my children what I’ve got

It breaks my heart to have to tell them, but how can I not?

Your mind is not your own, after being diagnosed with it.

But you have to accept it and just get on with it.

Parkinsons symptoms, there is quite a lot.

Some you can see, some you cannot.

Something beautiful that Parkinson’s has given me

Is friends who have been to me, like family

The understanding and knowing I am not alone

I’m so grateful for, all the help and love they’ve shown

Another thing Parkinson’s has given me, is a voice, I didn’t have before

I’m now not frightened to share, my thoughts, feelings and more

So Parkinson’s, you may cause me trouble and strife

Thank you for the wonderful friends, you have brought into my life

Because together we will fight you and stay strong everyday

I feel truly blessed, maybe one day, we will blow you away

Written by Shelley Edwards (c)

NOT JUST WORDS. 

I’m off, then I’m on, I’m up then I’m down

I’m happy and smiling, Sad and then I frown 

Confused & frustrated, 

Determined. Then deflated 
 

Stiff and In pain 

Oh & here come the tremors again 

Shuffling & slow

Can’t get up & go

Wide eyed & awake all night 

Staying Strong & ready to fight

All these words are describing what I go through 

Just wanted to explain, how I feel to you

There’s a lot of us out there, going through the same as me

This is what Parkinson’s is doing to them and me

They are my friends, we have this to deal with each and every day 

We are there for each other, come what may

Written by Shelley Edwards (C)

THE APO & ME

I never thought that this day would ever come.

Where my Shuffling, Shaking and Stiffness would almost be gone.

I really can’t believe it, it’s as though someone has blessed me, for sure.

I know it’s only masking my symptoms and that it’s not a cure.

But I’ll take it for now and make the most of my life, the very best that I can.

It’s made me feel brighter, and I’m so happy, I really, really am.

My body & limbs can now breathe and rest, Which they haven’t done for 8 years now.

I’m so thankful to have this Apomorphine Infusion pump & injections, My thoughts are Holy Cow!

Ok, I maybe sore from having the injections & infusion needles every day.

I’ve still got my pain, but I can’t complain, And I wouldn’t, anyway.

My husband has been giving me injections & the infusion, every day.

He’s been my rock, I’m so lucky to have him. I know he’ll be with me, all the way.

It’s as though my body and soul has been given a light so bright.

My little grandsons smile, when he saw me still, Absolutely filled me with delight.

I can’t express, what it means to me, to just be able to drink a cup of tea.

Without shaking and spilling it, on the floor or all over me.

To be able to eat a meal, for it to, not end up on the floor.

Now I can finish my meal and enjoy eating it all the more.

To be able to clean my teeth, and put my makeup on, before I go out.

It’s Amazing, It’s Wonderful, It’s A Miracle, I just want to Shout Out.

Thank you, all my family & friends who have been there, for me.

I love you all, from the bottom of my heart, Thank you all so much, for caring about me.

Written By Shelley Edwards (C)

NO ESCAPEES 

I FEEL SO BLESSED

I would like to share with you a letter my daughter wrote to me on her blog today, I am so blessed to have a daughter like her. She is so kind, caring, loving and beautiful. She has a heart of gold. You could say she takes after her mum. She is always there to help, in any way that she can. She is there for her grandparents if they need anything. She is there for me every day.. I know all I have to do is ask. Even though she has had a rotten time of it lately. She has still been there for me. I think we are so lucky to have each other .  We have shared  sadness,happiness,heartaches,good times,rough times. We have laughed hysterically together, we have cried together. We have talked about anything & everything. We have also sat in silence. We have a bond that is so special it can never be broken. It absolutely warms my heart and soul to read about how she feels about me. All I tried to do as a mum, was to see that she had a normal life growing up, and tried not to let my disability get in the way of that. I’d love you to read her blog and let me know what you think. 

A letter to my mum💜

https://ourownnormal.wordpress.com

SAVE OUR BEES 🐝🐝🐝🐝🐝

FINDING ME 

FINDING MYSELF 

What can I say, about the time I found out?

Did I scream , Did I shout?

Did I cry , or go to ground?

I did all of them and more!! Until myself, I found 

It’s not easy when you are being told.

I left the room , feeling so cold

I cried for a while, who knows , how long for?

I suppose anyone would , of that, I’m sure

Whatever may have been said , or how I was told

 It felt at the time, as though, it had been forbode

Although I never even spoke a word,

I still had realised, what I had heard.

So here I am , a few years have gone by 

And as they say , life still goes on. and so have I 

I’ve had many ups and I’ve had many downs

Yet my face , you will rarely ever see it in a frown

Twenty years ago , who’d have known

That I’d be here today , writing it all down

It helps me heal, like therapy, doing it this way

And hope it helps others, along the way

Who knows , where I get my poems or notes

As I’m not a poet , writer , or scholar of quotes

I may have certain things , that are wrong with me.

But it obviously ,has opened my mind to me 

It’s made me look , deep down inside.

And brought it all out, so there’s nowhere to hide

So I may have parkinsons , chronic pain and C.M.T.

But I’m happy and grateful , to have finally found, ME 

Written by Shelley Edwards (c)