I had a phone call from my neurologist, the other day and he asked me what was going on with me, I told him about my shakes on my left side, and that if I take too many Sinemet I get terrible dyskinesia and dystonia, I’m taking 3 – 62.5 a day , but because they cause this I have to half them and take them 6 times a day. So I’m not getting a lot of dystonia and dyskinesia , but that then means that I’m not getting a rest from the shakes . So he put me on Ropinerole last time I saw him and he wanted me to get up to 6 mg. which didn’t do any good, so he was saying that he would like me to get up to 10 mg. He also said would like to try another tweaking session. If that doesn’t work he will have to arrange for me a general anaesthetic to do an MRI scan on me. To see what is going on. To tell you the truth as I always do I’m a little bit fed up. I’m trying to stay strong but it’s getting harder by the day…. please forgive me for saying this, as I know some of you like my mdetermination and strength. But I can honestly say this Parkinson’s and the pain I’m in is really shit………..
LIVING WITH PARKINSONS & C.M.T. - MY THOUGHTS AND FEELINGS. 